The End Is In Sight

I’d say in all honesty it’s been a great month. Zach has had good days, grumpy days and a mix of both days, but what baby doesn’t.

We’re getting more confident about taking him out now and just getting things done. Trips to the shop and park are more frequent with the bigger goals of days away on the horizon. The park means one thing for Zach, hogging rides. He loves to sit and swing and doesn’t care who’s waiting for them. Neither do we to be honest. To get to that park it’s been more than just our 5 minute walk.

Before we started getting out I was worried about people saying things and giving us looks. I’m sure I miss more than I see. Doesn’t always bother me. Lack of understanding is the problem I think. Not everyone in our family understands so a person walking by certainly won’t. I’d happily talk to them about Zach all day long, these people though are the classic ones that stare and then pretend they weren’t.

Just today we’ve been out. One minute Zach was playing his games and going through his repertoire of tricks. The next he was gagging, his face going bright red and we needed to suction the secretions from his trache. Soon after that he was fine again. Nothing a cuddle, some calm and a fresh nappy doesn’t fix. This 5 minutes did receive some questions from onlookers. When we went to change his nappy it was presumed we were doing complex medical procedures on him. There was a time that for me a nappy change was complex, but now its just a nappy change.

We are still in hospital by the way and hopefully getting closer to the end now. It’s got to be. Zach is 10 months old and I just don’t want to do it anymore. Everything anybody does in hospital now annoys me. They have there jobs to do so have things they need to do.

It’s nothing personal, nothing at all. Without them we wouldn’t have the skills to care for Zach. But we can now care for him totally and truly. We want to get home and just visit a hospital knowing we can leave in less than 10 months time. If any nurses are reading this you do good work, great work even, however we want to do our job as parents now. Any person will have there own views on what’s best to do for a child. Good, decent and loving parents want there child at home with them. And as Zach is medically ready to do that, that’s all we want to.

We are eternally grateful to the NHS. The people that insult them are those that don’t respect it, take advantage of it and don’t deserve it. The bill for Zachs care is big. We have an approximate idea of the cost of the care he has received and I’d say it’s worth every penny. to think people complain about the car parking prices when just inside the building a friend or family member is being helped. I’d certainly pay £8 a day for that.

Our goal is to have Zach home before his first birthday. 2 months and counting until a great big celebration. We have no idea what we’ll do, or where it will be. We do know though it’ll be a chance to share our joy with those who have been with us throughout. Zach won’t have a clue what’s going on. We’ll just take lots of pictures to show him another day.